This link is an article about EE which is the condition Scotty lives with. I don't meet with these women weekly (it was the 1st time I have met most of them). They were nice and I feel for what there kids are going through. Seeing them makes me thank God for how well out little miracle boy is doing.
http://www.ahwatukee.com/articles/stewart_1950___article.html/disorders_adam.html
8 comments:
So, did he like it?
You're famous!!!
Hey, did anyone see Extreme Makeover, Home Edition two weeks ago? It was all about a family with 4 kids that all have EE. I bawled my eyes out a few times, it was very sweet and the family got a great new house out of it.
The show talked a lot about what is mentioned in the article, foods and financial problems. The show also made it sound like this is something that is really rare, it is great that you were able to find other mothers. And congrats with the waffles!
Abby
Sometimes its hard to believe Scotty even has EE! He just seems so different from the kids in th article...
I'm crying watching my sweet boy eating waffles and chanting "I LIKE IT" Thank you God for how far he has come!!
Next we are going to try Fat Tire!
Or straight saki - there's no cheese in that.
Ooohh.....I like the way Scott & Mikele think...rounds for all the babies!! I heard it makes them sleep awesome, well that's what my mother in law said anyway!! ONLY KIDDING, Nanny Betty told me that!! LOL HAHAHAHA
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